Tuesday, May 27, 2008

IVF 1: Introduction

I started this blog in part because Dr Hyde and I are currently grappling with infertility, and because it was awkward, to say the least, to talk about this with my friends or colleagues, most of whom are either utterly uninterested in reproduction or Malthusian-level fecund.

Initially, I looked at various websites (iVillage, etc.) with infertility message boards, on the theory that others in our condition would provide the best support network. However, after some grim hours spent reading those bulletin boards, I decided they were not going to be the answer. For starters, all the participants post in a special lingo that reads like a cross between your uninterpretable insurance bill and trucker shorthand. E.g., "DH and I have been ttc since May 05, 2 IUI, but both BFN, so now we're trying IVF with ICSI, got three nice embies injected yesterday!"

I have never in my life wanted to refer to an embryo as an embie, and am not about to start now.

Also, I have never thought that what the internet was really missing was a special emoticon for "My miscarried baby/ies are now winged angel(s) in Heaven." If you should care to see what this emoticon looks like, google it. I would prefer to take a heated horseshoe to my visual cortex than to carry that image with me.

This is not to disparage those who use these bulletin boards. It helps them--fabulous and huzzah. But what I need is more like the "Sarcastic cranky infertile atheist scientists" message board, and oddly enough, I have not found it.

So this is the intro to a series of posts for the critical thinker with infertility. Dr Hyde and I had our first consult with the in vitro fertilization (IVF, aka test tube baby) doctor last week, and we were told a lot of things we should and shouldn't do to help our putative offspring-making. However, as with many bits of doctor's advice, what we were told was based on a few badly-done research studies. I'm going to take some time to look up the primary literature and tell you what I think about it, and whether or not I buy into the advice.

I should say upfront:
I have ZERO medical training. You should NEVER take my advice over your doctor's, nor should you EVER take my advice without asking your doctor about it.

First up: Our nurse said, "There's some reason to think that acupuncture helps people who are undergoing IVF, so if you want, we can refer you to some people who do that."

Say what? Stay tuned.

17 comments:

Anonymous said...

the degree to which the childrearing process is full of data-free assertion is quite shocking

barbara said...

Best wishes to both of you! May you soon have the opportunity o find out how childfriendly your workplace is.

Anonymous said...

I check and double check my doctors and especially my kids doctors. They don't really read the literature as far as I can tell (I am sure there are some great doctors out there, even if the literature is scant and is badly done), so it is very very useful to be prepared!

It takes fortitude to do IVT. I've got my fingers crossed for you!

Katie said...

I can sympathize with your desire for the sarcastic message boards... the cutesy ones would make me want to hurl, too.

Please do use your blog as a forum for discussion. We are here for support. Some medical doctors are definitely a bit frustrating- in the past few years (since realizing the value of the literature as a Ph.D. student), I have become quite dissatisfied by the general lack of current and scientifically-sound information that many of my doctors display.

Fortunately, we are self-starting people with access to journals. I bet you'll be able to find current and useful info one way or the other.

Dr. Jekyll and Mrs. Hyde said...

Thanks for the supportive words, all.

Drugmonkey--you made me laugh. It is definitely clear that IVF involves a series of opportunities for you to feel guilty about whether or not you're doing everything "right," again a good introduction to parenthood, I imagine!

Anonymoustache said...

Good luck Dr. J.
Make sure that your clinic has been properly feng shui-ed before you go in for the acupuncture ;-)

Anonymous said...

Good luck with your IVF process! My best friend (also a scientist) went through 2 cycles (and gratefully has one healthy child), and it can be very frustrating. As far as an outsider can tell, many of the procedures involve a degree of "we did it this way last time, and it worked, so why mess with it" that is shocking to anyone who is comforted by supporting data.

And I hope you will ue your blog to vent and get what support you need. Even for people who don't struggle with infertility, childbearing can be trying.

chall said...

I wish you the best of luck with the IVF! (and not going mental after talking to MDs and listening to advice all the time)

Regarding the akupunktur; it could be one of those things correlated to the stress level in the woman influences the likelihood of pregnancy. Akupunktur might lower the stress in some women?! Like any other 'placebo' effect, if there isn't some medical proof that I have missed?!

Overall, it feels like it's like other people stated in the comments; not much is known and there is lots of opportunities for 'if it ain't broken don't fix' attitude.

Again, best wishes!

Jenny F. Scientist said...

I did a brief lit review on acupuncture recently, for an IVFing person. I think the best that can be said for it is, it almost certainly doesn't hurt anything. What is it with medical practitioners and... data? Or the lack.

Also? Would rather put hot needle through eye than have people poke me all over. I don't mind getting shots as long as I don't have to WATCH.

Anonymous said...

In my experience (and recalling that "data" is not the plural form of "anecdote", but nonetheless), massage therapists and acupuncturists are more successful at alleviating the cause of chronic pain and relieving stress than the average doctor who seems to say one of (1) you need surgery, (2) you should take this drug (that may cause blindness or diarrhea), or (3) we can't fix it. While I have no anecdotes for IVF, acupuncture seems to me to be a less invasive approach to try first or in parallel. Then again, it might affect the data point for the non-acupuncture route.

Whatever you choose to do, I completely support you and hope that it works!

Anonymous said...

We're near an academic medical center which we used for the arrival of kiddos and associated stuff. The whole place has got to be rich with scientist parents who work at the U. And yet...this process is just not compatible with people who want to know....why? Is there a study behind that? What does the combination of risk factors mean for the odds you are quoting? etc.

LindaCO said...

First time commenter here. Good luck with the procedure(s).

Dr. Jekyll and Mrs. Hyde said...

Hey Jenny F--feel like posting your results as part of your Ask a Scientist series? Anyhow, your general impressions are more or less what I'm getting too...

ScientistMother said...

good luck drj! you may know of this blog or not http://www.pcosbaby.typepad.com/, a fellow scientist dealing with infertility, met her through NaComLeavMo at http://stirrup-queens.blogspot.com. sorry if you've already tried these, but I found you because bean-mom mentioned you on my comments, just want to return the favor

Dr. Jekyll and Mrs. Hyde said...

scientistmother--that's so funny, you posted that suggestion while I was over exploring stirrup queens! thanks for the idea....

Jenny F. Scientist said...

Dr. J- will do when I have time. :) Maybe during a long incubation.

KW said...

Thanks for your comment yesterday. I indeed read this post when you first posted it, in my other life. And as I began the infertility treatments years ago, I thought of you as one of the only examples I knew of. I was glad it had worked for you. Unfortunately, not for me or you now. We go on. My fingers are crossed for you.